News From the Health Front

So, back from Duke and overall the news is good from the Lung Transplant Team at Duke Medical Center. Here are the highlights from this recent sojourn to Duke, with comments below:

1. No Acute Rejection detected in the bronchoscopy, as well as no Chronic – A0B0.
2. Blood work was good, white blood cell count is still hanging in there, a little low, but hanging in there.
3. X-ray was clear.
4. Pulmon Swallow test and Upper GI revealed that my Nissen Fundoplication had come loose, oops.

So, there is always more to the story than meets the eye, so here goes the minutia.

1. Just because the bronchoscopy shows no Acute Rejection doesn’t mean that Chronic Rejection isn’t possibly still present in the lungs. Acute Rejection, from what the docs have told me, is more widespread and thus, more easily detected in a bronchoscopy. Chronic Rejection, also from I’m told, can show up in places they don’t biopsy in a bronchoscopy. So basically, it can be hide-and-go-seek when it comes to finding Chronic Rejection in the lung tissue.

2. I started a regimen of Imuran (Azathioprine) 100mg daily about a week ago. That drug will mess with the ‘ol white blood cell count so, it’s bi-weekly labs for me to make sure I’m not more susceptible to airborne viruses or any other wonderful germs.

3. That’s about all there is to say for the X-ray. (Nice rhyme, huh?)

4. Acid reflux can be a big contributor to rejection of the lung tissue if you’re refluxing high enough, like to the Clavicle. The Barium Swallow/Upper GI study was ordered to see how things were in that department. In 2010, I had a Nissen Fundoplication procedure done which basically wraps the upper part of the stomach wall around the lower part of the Esophagus, in order to restrict acid flow back up the Esophagial path. This can also restrict food going down and can cause some swallowing issues. I’ve never experienced any discomfort from digesting food. But evidently, the wrap has come partially un-wrapped and they want to keep a close eye on it. Which might mean yet another lovely PH Probe is in my future, ugh.

If you are medical information nerd like me, here’s a link about the Nissen procedure:

http://www.mayoclinic.com/health/medical/IM03999

That’s about it for now. I’ll be back at Duke in 6-8 weeks for another bronchoscopy. The Lung Transplant Team at Duke likes two bronchoscopies in a row that are clear of any rejection before they pronounce you rejection-free!

The Lord continues to guide on this health journey and I am grateful to be able to breathe for Him! Job 33:4

About DGaines

I am a follower of Jesus Christ and try to live a life worthy of that calling. I am a mess up, a failure and in desperate need of grace and mercy, and that becomes clearer each and every day that I live. My goal is to treasure Jesus Christ and help others to consider Him. Life has thrown me some major curveballs. I am a double-lung transplant survivor and grateful for life, love and a second chance. I am an adopted child who is very thankful for a birth mom I never knew that gave me a chance in this life. As a professional musician, I've been blessed to be a part of some amazing ventures throughout my life. I've had some wonderful mentors throughout my lifetime and I am forever grateful. I play ALL kinds of music and love every minute of each genre or style. My blog posts will hopefully run the gambit of all things that are life. I think a lot, sometimes a blessing, sometimes a curse. :-) I love camping, hiking (as I'm able), going to the beach, music and reading. I'm a bit of a tech junkie, mainly when it comes to music technology. If you like what you read, please share it if you don't, I would love to know! I'm learning to grow from constructive criticism, something I haven't always been good with. Soli Deo Gloria Sola Scriptura Solo Christo Sola Gratia Sola Fide
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3 Responses to News From the Health Front

  1. Kim says:

    Praising The Lord with you, and prayers for good health to continue for the glory of God! Blessings to you and your family.

    Like

  2. Judy says:

    Praise God for good news.

    Like

  3. Donna Tallman says:

    Blessings as you continue the ongoing medical procedures…thankful for each day’s breath.

    Like

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